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Rare Disorders Database - 211 San Joaquin | Get Connected. Get Help.

Rare Disorders Database

Agency: NATIONAL ORGANIZATION FOR RARE DISORDERS

  • Description: Provides information sheets from database in patient-friendly language on more than 1,200 rare diseases. Each report provides a basic introduction with links to resources for additional information and assistance.

    • Phone:

    Email: orphan@rarediseases.org
    Website: www.rarediseases.org

    Program Hours

  • Hours: Mon: 8:30am EST - 7pm EST; Tue: 8:30am EST - 7pm EST; Wed: 8:30am EST - 7pm EST; Thu: 8:30am EST - 7pm EST; Fri: 8:30am EST - 6pm EST;

    • Location(s)

    NORD - Connecticut

    • Accessibility: Potential limitations to access – call for information
    • Address: 55 Kenosia Avenue, Danbury, CT 06810

    Program Delivery

    • Eligibility: Open to all
    • Languages: English
    • Application Process: Please search Rare Disease Database on website for full report(www.rarediseases.org) two reports can be printed daily at no charge. System will require registration to this site if client chooses to view a full report.
    • Program Fees: Call for information
    • Required Documents: None

      • Service Area

    • Defined Coverage Area: N/A